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Subject Topic: Big day, tomorrow....
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08/4/2016 at 8:06am
 Location: Kent
 Outfit: 5m Bell Tent & Olpro Pop Tent.
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Ive got cramp in my fingers, they have been crossed for so long. No matter what the outcome mate I hope your other 4 grandchildren are bracing themselves for an extra tight and extra long cuddle from nanny & grandad when you next see them. Thinking of you all still. A special virtual hug is sent your daughter & partners way from us. xx


08/4/2016 at 9:41am
 Location: high wycombe Bucks
 Outfit: Royal Winniepeg 4 Daxara trailer
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Fingers crossed here too. Hoping for the best outcome.


08/4/2016 at 10:02am
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Quote: Originally posted by romany girl on 07/4/2016
Fingers and toes crossed for you and your family Mucker, l have a sneaky feeling that your little one will hold on until Sat 8th, which would have been my daughters 37th birthday. Kay was always the first to get down to the delivery suite whenever a new arrival was about to make an appearence, and im sure that shes watching over you all with caring protective angel wings as you face this difficult time, and praying for the best outcome for this special precious little girl.

Julia


Lovely post Julia, it's a heartbreaking situation for mucker and his family. Every time I read it I weep.praying hard for the wee one still


-------------
Who needs travel agents,we have our static


08/4/2016 at 10:22am
 Location: west yorkshire
 Outfit: Tentless
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Still have fingers crossed here too xx

-------------
caraline



08/4/2016 at 10:28am
 Location: Monmouthshire
 Outfit: Karsten 350 with SE CA EA FW RA
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Fingers crossed for you and your family.


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08/4/2016 at 4:43pm
 Location: Yorkshire
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Just to let you know you're in my thoughts today.

Sending positive wishes your way and hoping for events which you can all somehow accept and find peace in.




(Edited because the first way I wrote it didn't sound quite right. I hope you know what I mean. x)


Post last edited on 08/04/2016 16:52:43


08/4/2016 at 8:49pm
 Location: Blackburn
 Outfit: VWT6 campervan
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Hoping little one has made a safe entrance Mucker and you are getting to spend some lovely quality time with her.

Love and strength x


08/4/2016 at 9:53pm
 Location: East Ull
 Outfit: Kampa Kielder Air 5
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Oh Mucker, I'm so sorry I've only just seen this post.

Bless you all, I hope you get the time with your beautiful granddaughter that you hope for x

-------------
May/June - Spring Valley
Aug/Sept - Leekworth




08/4/2016 at 10:07pm
 Location: Devon
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Quote: Originally posted by Mucker1884 on 06/4/2016
Back in November, Muckerette and myself were presented with the wonderful news that our daughter was to gift us with our fifth grandchild. Due in the Spring. Just as the flowers begin to blossom. Just as the grey clouds turn to a nice fluffy, brilliant white. Just as the sun doffs it’s very own cap, as if to welcome our new addition personally. How beautifully poetic!

...“A few complications, but nothing major” was the initial, tentative message. As daughter is in her 30’s, there were more tests/scans to come, but all par for the course, it seemed, so the beginnings of celebration quietly got under way.

Fast forward two more weeks, to the 1st December, and the next scan (around 19 weeks gone) revealed something a tad more serious. A further 48 hours on, following a more intrusive and concise test, and tellingly the unequivocal results, confirming something that wouldn't even come under the heading of “A parent’s worst nightmare”! Something that none of us had even heard of before, if truth be told. Something so unfair... nay, so evil, so wanton... that it tore right through the heart and soul of this otherwise blessed and fortuitous family of ours. Something nobody on Earth would surely wish upon their most vehement enemy, but was now being thrust upon the most fragile, innocent, and undeserving victim imaginable... an unborn baby!

The list of negatives were not only countless in their number, but, even if listed individually, would bring the world’s most heartless and sadistic monster to its knees... but this list was combined, as one humongous, grotesque, and truly sickening savage beast ... Physical and mental... inside and out... visible and invisible... Flesh, bone, and organs! A combination so powerful, that it cannot be countered. Cannot be mastered. Cannot be beaten. Cannot even be alleviated.
A combination of problems each as stomach churning as the next.   So much so, I wouldn't even begin to list them here. None of you deserve to read such an abominable and abhorrent list... not that I could bring myself to type them anyway!
There is no cure. No hope. But maybe a little time... if we get a miracle!

My initial web-searching of this condition, back at the onset of winter, kept bringing up the same nauseating phrase, time after time, page after page... “Incompatible with life”.
You read that right... Our granddaughter was being labelled “INCOMPATIBLE WITH LIFE”!!   
...Until I first read that, a few long months ago now, I honestly thought it was only sticks and stones that could cause pain!

It appears that “Edwards’ Syndrome” is just about as cruel and hopeless as it gets. It may hide behind the less threatening title of “Trisomy 18”, or the almost cute sounding “T18”, but call it what you will, truthfully, this bastard of a condition leaves you cold to the core.
Offering maybe the most minute speck of hope in its “mosaic” (partial) form, the number of surviving “Edwards’ Adults” can seemingly be counted on one hand!
Full Edwards Syndrome however, as we were being informed was what was facing our dear unborn granddaughter, offered nothing, it seemed. Absolutely sweet FA!


Initially, the plan was to have all proceedings at QMC (Nottingham), as they apparently are better equipped, with better facilities, but as it became apparent that we were looking at Full Edwards’ Syndrome, and that there is unlikely to be any attempt at any true treatment, operation(s), or even resuscitation, (The harsh facts of being “Incompatible with life”, it seems!!), all has remained here at our local Derby Royal Hospital. And I have to say, at this stage, from related stories, and indeed from the little I have witnessed at first hand myself, the medical staff have been truly magnificent, as ever.
...I say “magnificent”, but of course, in reality, there is little to nothing they can actually do. Of course, should she ultimately honour us with her presence, they've promised to at least try to keep her comfortable. Try to keep the pain at bay. And even try to “feed” her, of sorts, if she’ll allow them, that is!
But ultimately, even the experts can do little more than cross their fingers, as they stand beside us.
I guess this sort of thing can’t be easy for them either, when their whole life is geared to helping, caring, and treating, yet realising there is undoubted failure around the corner.
My heart is with them, as well as my family.


From those very early days, we were made fully aware of the stats... and they were grim to say the least!
First off, “the majority” (I've no idea whether that means 51%, 99%, or whatever point 'twixt the two?) don’t even get a sniff at reaching full term. Not a hint of life, or a single breath of air!
Even from this advanced point we now find ourselves at, just 3 weeks short of full term, “the majority” still fail to reach the finish line. Still fail to be born alive.
Fact is, right here, right now, she has already won round one, as she’s still kicking, still fighting... and that in itself, is against the odds!
Some would see even reaching this stage as a victory, but truth is, should she become our very own miracle baby, the stats continue to batter her down...
Of the minority... those that do battle successfully to a live birth... the figures get no more generous... And no less daunting... “1% reach their 10th birthday”. “Only 8% celebrate their first birthday”. The rest are scattered somewhere between “a few months” and “an hour or so”! “Average life expectancy for those “Edwards’ babies” that are born alive... 4 to 14 days”!!!
A major miracle is needed just to even get a sniff at actually holding her alive, it seems.


...Around the middle of January, I saw her, for the first time, with my own eye’s... albeit only on the scanner screen, of course. (The scans have been regular and often, and a number of relatives have been invited along at separate occasions, due to the less than positive circumstances.)
She was far from pretty, as one would expect, and yet she appeared to be the most beautiful thing I have ever clapped eyes on!

More recently, we have received more up to date pics and vids from daughter, from the latest scans. Much less tadpole-like now, of course, being that much further down the line. Dare I say, she’s been looking more like “one of us” of late, with clear, recognisable features... albeit some being far from perfectly formed.

The plan, of course, right from the beginning, was to “not build our hopes up”... But as we now creep tentatively into the final straight, I cannot deny, perhaps foolishly, our hopes grow... along with our fears, of course. It is fair to say, things are now getting somewhat nervy and emotional chez Mucker!    As Muckerette and myself hold hands and hug, we slowly but surely pass on our own strength to each other... but in doing so, we rapidly weaken our own minds and bodies in the process, of course! That alone, seems to be fast becoming a losing battle of our own!

As recent days have passed, our hopes told us we were one day nearer to holding our new granddaughter, but our fears told us we are one day nearer to personal heartache. And whilst the heartache is of course guaranteed, the timing isn't.

...Which brings us to now, and the latest update...

Yesterday, just those 3 short weeks to full term, the latest scan was undertaken, and after many downs, and a few ups, since November, the medical team are now advising action. There seems little to no improvement in her development over the past week, and they fear that she may not survive another 3 weeks in the womb. There was talk of “If you want to stand any chance of meeting her, we’d better be quick!”
So the battle plans are being put in place, and inducement is to begin tomorrow at noon.

Evidently, the true and precise outcome, as we stand right here, right now, still remains a complete and utter unknown. Unfathomable even.
But it appears she now faces her last... and only... chance of life!


Personally, my own hopes are for just enough time... Enough time to touch her. Enough time to stroke her. Perhaps even enough time to gently caress and massage her weary, fragile frame, soothing her pain, easing her breathlessness, calming her very own fears within, of what is to come.

Enough time to instil within her the true meaning of love, adoration, and endearment. Enough time to form at least an inkling of a bond. Enough time to convince her just what a delightful and cherished addition to the family she truly is. Enough time to see a hint of a smile. Enough time for her to make eye contact, and see the pride in these rapidly greying eyes of mine.

Most of all, and somewhat selfishly, I pray for enough time to drop to my knees, and beseech her forgiveness. To admit to her my own failings, on this particular occasion at least. My failings, as her granddad, to protect her from the unimaginable and immeasurable pain and torment she is probably suffering right now, within the womb, but almost certainly will be, sometime soon... should she emerge alive, of course!

If indeed there is a God, then I beseech thee Oh Lord... give us that time.
If it must be merely one hour, then one hour I will accept... with grace and gratitude!
With the cruel cards already dealt and laid before us, I simply dare not wish for more!

It’s been a long, slow winter, that’s for sure, but if ever a reminder was needed, to convince me just how precious time is, this particular thunderbolt through the heart is most certainly it!
But for now, it appears, time is what we won’t have. Time, it seems, is the enemy. Time, it is feared, will be the victor, one way or another.
“Time is precious” they say... Oh, how painfully true that seems, right now!

Desperate times call for desperate measures, so with that, I promise to attempt to keep you good people updated, just as long as you promise to keep your fingers crossed for us... It seems we need all the help we can get, if we are to get any chance of even a few hours in the company of our beloved new beautiful, brave, battle-weary granddaughter.



Keep fighting, Sweetheart... you’re almost there!
XXX




So humbling, tears in our eyes and prayers sent


-------------
2018 & so it begins.

April - please, just one weekend!
May - Who knows....
June - Tristram, Polzeath 10 nights
August - Dartmouth Regatta 4 nights






08/4/2016 at 10:59pm
 Location: Derby.
 Outfit: Karsten 350+Awnings
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Well, what can I say... I guess first off, I need to apologise for the dramatic thread title!

...Another slow day, with little in the way of developments/progress. So much so that, despite already undergoing the first phase of being induced, literally about 45 minutes ago, daughter has been advised to take a 24 hour break, go home and spend the night in her own bed, and return tomorrow evening! (I know! Tell me about it!)
By the time they've packed their bags and put all their 10p pieces in the car park machine, the bloody pubs will be shut!!

All very frustrating, of course. But they are the experts when all said and done, so we have to trust their judgement... and afterall, I guess that means baby is still safe for now!
Does make you wonder what all the fuss was about on Tuesday though, when they suggested they needed to speed things up!

Shall we just say, for now at least, proceedings are on hold, and I'll get back to you... "maybe not today, maybe not tomorrow..." as the saying goes!



-------------
2024: Late start... bear with us!
2023: 47 nights
2022: 40 nights
2021: 30 nights
2020: Just 24 nights
2019: A personal best 50 nights
2018: Just the 30 nights
2017: 34 nights
2016: 32 nights
2015: 38 nights
2014: 34 nights
2013: 36 nights
From July 2012: 23 nights


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08/4/2016 at 11:20pm
 Location: Wallsend
 Outfit: Kampa Hayling Air pro 6
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Quote: Originally posted by Mucker1884 on 08/4/2016
Well, what can I say... I guess first off, I need to apologise for the dramatic thread title!

...Another slow day, with little in the way of developments/progress. So much so that, despite already undergoing the first phase of being induced, literally about 45 minutes ago, daughter has been advised to take a 24 hour break, go home and spend the night in her own bed, and return tomorrow evening! (I know! Tell me about it!)
By the time they've packed their bags and put all their 10p pieces in the car park machine, the bloody pubs will be shut!!

All very frustrating, of course. But they are the experts when all said and done, so we have to trust their judgement... and afterall, I guess that means baby is still safe for now!
Does make you wonder what all the fuss was about on Tuesday though, when they suggested they needed to speed things up!

Shall we just say, for now at least, proceedings are on hold, and I'll get back to you... "maybe not today, maybe not tomorrow..." as the saying goes!





.....we will still be here. Thinking of you and your family but most of all that baby who is currently calling the shots xx


09/4/2016 at 12:22am
 Location: Northern Ireland
 Outfit: Bell Tent Vango Coleman and Quechua
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thanks for the update


09/4/2016 at 12:32am
 Location: Suffolk
 Outfit: Coachman Amera
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Just had to send you a gentle hug, you are in my thoughts and I hope your little princess will stay for a while to be spoilt. I can't imagine how you are feeling but stay strong, there is always someone here to answer you post. xx


09/4/2016 at 10:28am
 Location: Kent
 Outfit:  Karma 5M belltent Static caravan
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Thanks for the update Mucker still thinking of you and fingers firmly crossed..hope you get to have cuddles very soon with your very precious Grandaughter.xx

-------------
Camping Tip #26: In an emergency, a drawstring from a parka hood can be used to strangle a snoring tent friend...or husband!!


09/4/2016 at 12:18pm
 Location: stoke on trent
 Outfit: Bailey 75-2
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Still thinking of you and your family mate


-------------
April Peak District Beech Croft Farm
May Peak District Duke of York
May Holland Delfse Hout
June Cotton Arms Nantwich
july/aug Cornwall Pentewan Sands
And quite a few local weekenders


09/4/2016 at 3:37pm
 Location: Blackburn
 Outfit: VWT6 campervan
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Checking in...still in our thoughts x



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