Thank Case01 and Emerald, I will be googling all those terms and will hopefully be able to get a similar kind of meet going on my side of the Irish Sea
No problem Victoria, its a bit of an odd one that I have. It often appears as severe mood swings, frustration more than anything else, poor mixing, slower than average learning skills... its like ADHD meets dyslexia, dyspraxia and an inability to mix or socialise. Or at least this is how it can display in some children.
Its to do with the nerve impulses getting confused between the eyes and the brain. There can be odd signs like not liking bright lights, being worse at taking information in off a screen or in my case, being able to write stuff down from my head but having real problems with comprehension.
But there are ways around it, coloured glasses or over lays, programs that read to you... learning in a more verbal, hands on way. And while it is a form of learning disability, I went to Uni and had a very successful career as an ITU nurse before going back to Uni and becoming a fine art photographer.
If it is something like what I have, simple things can make the world of difference.
Quote:
I said a rare form of A-Typical Autism not just straight forward A-Typical, most havent heard of PDA(Pathological Demand Avoidance Syndrome) so its easier to describe it as a rare form of A-Typical Autism. The strategies you use for PDA have to be constantly changed as normal autism strategies dont usually work with PDA.
Ahh but I have.
This was one of the labels that had been considered for my eldest son, but in the end it turned out that he was actually on the Autistic Spectrum and not diagnosed with PDA or ODD. (Oppositional Defiance Disorder)
PDA isn't on the autistic spectrum and isn't a form of autism, but it's symptoms are very similar in nature. It is a related condition and also comes under the Pervasive Development Disorder (which includes autism, ADHD, dyslexia, dyspraxia etc)
Interestingly one of the children who will be camping with us has a dual diagnosis of autism and PDA.
It is quite common to actually have more than one diagnosis when the person has autism.
What a fascinating thread! I was off camping with a group of adoptive mums the other week. Many of us have children with a wide range of disorders. I've heard of PDA and ODD too
That camp was just mums of older children, but we have a range of meetups for some very similar reasons to you. Adoption isn't what it was in the 60's and many of us are parenting very damaged children. When we take the kids along we block book an outdoor centre or something like that. Safety in numbers again!
We all find it enormously helpful to meet up with like-minded folk who all understand what's going on with our kids.
Quote: Originally posted by chelltiger on 26/5/2011
Quote:
I said a rare form of A-Typical Autism not just straight forward A-Typical, most havent heard of PDA(Pathological Demand Avoidance Syndrome) so its easier to describe it as a rare form of A-Typical Autism. The strategies you use for PDA have to be constantly changed as normal autism strategies dont usually work with PDA.
Ahh but I have.
This was one of the labels that had been considered for my eldest son, but in the end it turned out that he was actually on the Autistic Spectrum and not diagnosed with PDA or ODD. (Oppositional Defiance Disorder)
PDA isn't on the autistic spectrum and isn't a form of autism, but it's symptoms are very similar in nature. It is a related condition and also comes under the Pervasive Development Disorder (which includes autism, ADHD, dyslexia, dyspraxia etc)
Interestingly one of the children who will be camping with us has a dual diagnosis of autism and PDA.
It is quite common to actually have more than one diagnosis when the person has autism.
Tell that to NAS and the clinical psych who diagnosed her then, its in black and white on NAS's website. Im already a member of pda contact.
They usually have a lot of ASD traits but dont quite fit thus most getting the dual A-typical autism with PDA diagnosis. NAS supported the 1st PDA specific conference in London early this year with another the same in Manchester later in the year as demand was high and it was very successful, Im hoping to get to that one.
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Special Needs Mum, Overprotective With Serious attitude!
I have just found this thread. My son has Aspergers and is 13. I run a local support group, so will spread the word!! My husband and other sons don't camp, so it would just be me and my son - sounds like fun. Its always good to share highs and lows and ideas. Where and when?!
Btw my son wears special blue lenses for reading, computer work, etc as we found out that he couldn't see the spaces between words. His reading has really improved!
Tell that to NAS and the clinical psych who diagnosed her then, its in black and white on NAS's website. Im already a member of pda contact.
I won't have to as the diagnostic criteria is changing with the new DSM V, which will also remove the diagnostic label of Aspergers.It will all be Autism.
Don't know how that will go down with the NAS as it was their founder Lorna Wing who brought it into the limelight after Aspergers had identified it during world war 2.
it can be rather frustrating when they keep changing the goal posts. Will they still be diagnsosed or not. I don't know, but I can't see the consultants wanting to go back over all those they had previously diagnosed just to give them the new correct diagnostic label.
They didn't rediagnose my eldest son when it changed before.
So long as that label enables you to get the right support and be able to find the advice that will benefit you it doesn't really matter.
Think thats a great idea! Would be very helpful to know which sites were especially welcoming, although I find that just having our own bit of home with us, eg.duvet, pillow, really helps. My son likes to organise our "camp" to make it his!!
Amazing family weekend with old steam engines, classic car displays, market stalls, and full catering and bar. And camping on site - Save £25 by booking in advance.
Topic: Friends who are UKcampers.
